Delusion Support: Six Essential Tips / Alzheimer’s and Other Dementias
39 min
•Dec 10, 2024over 1 year agoSummary
This episode provides six essential tips for caregivers managing delusions and hallucinations in loved ones with dementia and Alzheimer's disease. Hosts Sue Ryan and Nancy Treister share personal experiences and practical strategies for staying calm, validating emotions, redirecting attention, and processing the emotional toll of these challenging situations.
Insights
- Delusions and hallucinations are neurologically real experiences to the person experiencing them; arguing or reasoning with them typically escalates distress rather than resolving it
- Caregivers must adopt an 'acting' mindset to meet care recipients where they are emotionally and cognitively, requiring conscious suppression of natural defensive instincts
- Documenting triggers, successful interventions, and patterns enables better preparation and helps other caregivers replicate effective strategies
- Medical conditions like UTIs and medication side effects can cause or exacerbate hallucinations, requiring physician consultation for uncommon episodes
- Caregiver emotional processing and self-compassion are critical components of sustainable caregiving; guilt and grief require external support systems
Trends
Growing emphasis on caregiver mental health and emotional resilience as integral to dementia care qualityShift from medical/clinical approaches toward behavioral and environmental management strategies for dementia symptomsRecognition that dementia care requires specialized communication techniques distinct from standard patient-provider interactionsIncreased focus on documenting and sharing effective caregiving interventions across care teams and family membersSundowning and 'tired brain syndrome' identified as predictable, manageable patterns rather than random behavioral crisesIntegration of validation therapy and person-centered care approaches in dementia management guidanceAcknowledgment that identity loss and non-recognition of loved ones creates distinct emotional trauma for primary caregiversPreventive health monitoring (hydration, UTI screening) positioned as critical to reducing behavioral and cognitive episodes
Topics
Delusions in dementia careHallucinations management strategiesAlzheimer's disease behavioral symptomsFrontotemporal dementia and primary progressive aphasiaSundowning and late-afternoon behavioral changesCaregiver emotional trauma and griefValidation therapy techniquesEnvironmental triggers for dementia episodesMedication side effects and hallucinationsUrinary tract infections in elderly careIdentity loss and non-recognitionCaregiver support groups and mental healthDementia care documentation and playbooksTired brain syndrome in agingPerson-centered dementia communication
Companies
Whole Care Network
Podcast network hosting The Caregiver's Journey; provides disclaimer and platform for episode content
National Institute of Health
Referenced for clinical definitions of delusions and hallucinations used in episode educational content
People
Sue Ryan
Co-host sharing personal caregiving experiences with husband experiencing dementia and hallucinations
Nancy Treister
Co-host sharing experiences with husband with frontotemporal dementia and primary progressive aphasia
Quotes
"Delusions are thoughts. They're false beliefs held strongly despite evidence to the contrary. Hallucinations are sensory experiences. When the person sees, hears, smells, tastes, or feels something that isn't there."
Sue Ryan / Nancy Treister•Early in episode
"You've got to put on your inner actor. This is your chance to win an Emmy. Every time put on your inner actor, check your body language and really get in there with them."
Nancy Treister•Tip One discussion
"This is the truth they need to hear. It wasn't the real truth, but it was the truth they needed to hear. And so I did it from the energy of telling the truth."
Sue Ryan•Tip Three discussion
"Give yourself grace upon grace. For us going through this, again, we don't have a reference reservoir for it. We didn't go to school for this."
Nancy Treister•Tip Six discussion
"The part that hurt me the most is early in his diagnosis. When he did still understand for the first couple of years, he would be frightened about what was going on. And I told him time and time again, we're in this together. I'm not going anywhere."
Nancy Treister•Tip Six discussion
Full Transcript
This is the Whole Care Network. Music Helping you tell your story one podcast at a time. Content presented in the following podcast is for information purposes only. Views and opinions expressed in this podcast are solely those of the host and guest and may not represent the views and opinions of the Whole Care Network. Always consult with your physician for any medical advice and always consult with your attorney for any legal advice. And thank you for listening to the Whole Care Network. Music When your loved one has delusions and or hallucinations, particularly the first time, it's probably going to be very scary for you. It was for both of us. We want you to be better prepared than we were. We sure do. Now, a lot of what we're going to talk about today is probably going to go against your natural instincts. In this episode, we're going to talk about how to be prepared, how to be present, and how to act. And we mean that literally. When your loved one has delusions and hallucinations. We have six tips. Sue, you ready to get started? I am. Welcome. We're Sue Ryan and Nancy Treister. This podcast brings our years of experience in a variety of family caregiving roles to prepare you to navigate your caregiving journey. We're sharing our personal experiences, not medical advice. And because it's our passion to support you on your journey, we believe no topic is on limits. Let's get started. Music We're starting out this podcast episode with a disclaimer. The majority of our podcast episodes are about 20 minutes. And yet we feel like this one may last longer than that because this is a topic that is a very serious topic. And it's sometimes scary for both our care receiver and for us. It's very serious and we're making it very real. We're sharing stories from our own experiences and others to help you understand both hallucinations and delusions. The other thing we wanted to make sure we're doing is often people use them interchangeably. And we felt it would be really responsible for us to bring you a definition of what that is. And the National Institute of Health summarizes the definition this way. Delusions are thoughts. They're false beliefs held strongly despite evidence to the contrary. Hallucinations are sensory experiences. When the person sees, hears, smells, tastes, or feels something that isn't there. Several common examples of this to give you kind of an idea of what they are is believing they're not in their own home. Someone is stealing their belongings, not recognizing who we are and not believing us when we say who we are. Believing others are conspiring against them, seeing people who aren't there and not recognizing themselves in the mirror. And Nancy, you've got a pretty powerful story about that. I do. Now, my husband has, we've discussed this before, he's got frontotemporal dementia, something called primary progressive aphasia, which means that what went first was his language capabilities. So when he was earlier in his diagnosis, he would talk and he would, you'd have, he'd be having a conversation with you and he's skipping words and using a lot of what I come to call gibber jabber. And he had no idea that what he was saying didn't make any sense. And we would go along as best we could. And sometimes if he's trying to tell me something that I have to say, you know, okay, show me, show me because I didn't understand at all what he was talking about. But he had a unique hallucination. And that was he didn't recognize himself in the mirror. He thought it was someone else. So he could have the longest best conversations with someone we become we came to call the man in the mirror. He would jibber jabber up a storm with the man in the mirror. They laughed. They had the best time he'd point at him. I mean, he the man in the mirror became his best friend. And what was wonderful about is the man in the mirror didn't ask him questions. The man in there understood everything he was saying. It was awesome. And that worked really well for us for a while. And then he started getting angry with the man in the mirror. He started getting scared of the man in the mirror. There was a point where I took all the mirrors down in our entire house anything anything that was hanging. And I hung sheets over the mirrors in the bathroom because the man in the mirror was upsetting him so much. And then one day he pushed the sheet aside and looked at the man in the mirror and started having a pleasant conversation with him again. And all was good. And I took the sheets down and we were back to the man in the mirror was a good thing. What's important about that story is these delusions and hallucinations are very, very real to them. And so a lot of what we're going to talk about now is how to handle those because you've got to get in the right frame of mind that this is real to them. In many cases, they are frightened or angry or upset. Not every not most delusions are not as pleasant as the man in the mirror who's a good buddy. They're very frightening and very upsetting and very scary. So when we get into these tips, you need to get in the right frame of mind that this is very real to your loved one. So let's start with tip one. Yep. Tip one is about getting yourself in the right frame of mind when this happens. So when it starts, you may find yourself doing a quick check. Who are you? I'm Nancy. No, you're not. As soon as you get that quick pushback, this is going to go against most likely your natural instincts, but you need to just stop. Especially the first few times it happens, you're going to be upset and horrified and you're going to naturally want to argue. You need to get calm, calm down. Take a deep, deep breath. And I can't tell you many times I told my mother in law this, you've got to put on your inner actor. This is your chance to win an Emmy. Yep. Every time put on your inner actor, check your body language and really get in there with them. You're going to have to meet them where they are. Yeah. Don't argue. Don't try to convince them otherwise on their topic. Don't try to reason with them. Once you get that first little pushback and you realize you're in one of these delusions or an hallucination, you got to get in there with them. Absolutely. And don't rush through it. We're going to help you figure out how to get through it most of the time. And your instinct after you do it a few times is you're going to want to get to the end really fast. Don't do that. Sometimes you lose your opportunity and you cause it to go on much longer than it should have because you tried to rush it. Nancy, it's a really good point about getting right in there with them because we could be considered a stranger to them. Good point. We don't think we're a stranger to them. We may have known them 50 years and yet to them we may be a stranger. And so when we meet them where they're at and recognize that they don't know who we are, and here's the other important part to help us through this is and not take it personally. Part of the reason we want to convince them, no, no, I'm your wife. I'm your husband. I'm your this or that is that we're taking it personally. It's like, like we could convince them and we can't. Yes. And we want to just like you would in a bad in a high emotionally charged situation. You want to speak calmly. You want to speak slowly. You don't want to add to a highly charged situation. You're trying to diffuse. So put on your best actor or actress. And start diffusing. And one of the tricks you're going to use, we've got a whole tip on this is you're going to tell them the truth they need to hear. We'll talk more about that later. Yeah. All right. So you want to take us to tip two? Absolutely. Tip two is to validate and reassure them. We've we've figured out where they're at and we're meeting them where they're at. What we don't want to do is actually ask questions about the delusion itself. So for example, if they say somebody stole my wallet. Instead of saying, well, why do you think they did that? Or where do you think they put it? It's ask them how they how they feel and acknowledge that this is scary. I could see how that might make you feel scared or upset or whatever it is. Acknowledge what they're saying and then listen without judgment to what they're saying so we can get more about the underlying emotion. They're feeling. And when we acknowledge that this is what it is and we identify, yeah, I'm right there because as we said just a few minutes ago, we may be considered to them a stranger. So the more we can be reassuring and meet them where they're at, I can understand how that might be frightening. And I could see how that would make you feel. That's what would help them get more to a place of being normal and then start using reassuring phrases with them. You know, you're safe. I'm going to be right here with you. And Nancy, that's a story you've got a really good powerful example of that too. My mother-in-law and father-in-law, both 90, lived three miles away and he had Alzheimer's. He just passed away a few weeks ago, but he had Alzheimer's and his sundowning definitely started to cause him in the afternoons on a fairly frequent basis. I'd say four days a week, maybe five to want to go home and not know where he was. Out of that, probably 50% of the time, he didn't know who my mother-in-law was and he thought she was a stranger. So he was in a very uncomfortable situation. He was in a strange place with a strange people and he was very concerned. Now remember, he's 90, very concerned that his mother and father didn't know where he was. So he's frightened, strange place. My parents don't know why I am. They can't come get me and I need to go home. So of course, I said, this goes, everything we're coaching you on here goes against most of your natural instincts. And it did so with my mother-in-law. And so she would fight with him. No, we are home. We live here. No, we don't live here. He'd say, yes, you do. And when he knew who she was, still, he didn't believe they lived there. No, we don't live here. Whose house is this? Et cetera, et cetera. And she would try to reason with him and logic with him and he would just get more and more and more upset. And so she would call me five o'clock in the afternoon. Can you come over? I can't calm him down. So I was always able to calm him down, but that's because I use the tips that we're talking about here. So I drive over. I'd sit down next to him, look him straight in the eye and I'd say, Pat, tell me what's going on. And he would say, well, I need to go home. And I'd say, okay, all right, I understand that. My mom and my dad, they don't know where I am. I need to tell them where I am. I'd say, well, they know where you are. I said, they're expecting you to come home, but not until tomorrow. And he'd say, tomorrow? Yeah, they know you're coming home, but you're just going home tomorrow. It's getting late tonight. It's getting ready to be dark. You're supposed to spend the night here tonight and then go home tomorrow. And he would say, tomorrow? I'd say, yeah. He'd say, okay. And then he was good. Now, I'm telling you, that's why I'd go over there and I'd do the same thing every time. Now, if he wouldn't calm down quite as quickly, I'd say, we're here. You're safe. It's okay. Everybody knows you're here. I'd reassure him because he was concerned. People didn't know where he was. So everything we just said, I would do consistently. Finally got my mother-in-law where she would not fight with him for the first, then she thought she could fight with him for 30 minutes and then turn around and do what I just said. And I'm sorry, you missed your chance if you did that. So the best thing is, as soon as you get that inkling, we're in one of these, get in there with them, in the world they're in and start diffusing the situation and validating their feelings. And making them feel safe and you'll get through it. Anyway, that's validate and reassure. That's huge. Very good. How about tip three, Nancy? Yeah. Tip three is the truth they need to hear. And so you coined this phrase and that's why we have it as the name of the tip because I love it. So why don't you at least tell us what we mean by that. All right. I was raised not to lie. And there's an energy when you're lying. You're just your body language is different. There's just, you know, unless you're really good at it, which I'm not, but the people lie. And so what I recognized is that it would be healthy for them, for me to tell them something that could be the truth for them. It wasn't the real truth, but it was the truth they needed to hear. And so I did it from the energy of telling the truth. This is the truth they need to hear. And it was confident. It was, I'm telling them the truth, my body language, I could look them straight in the eye. I could do that. And that's the truth they need to hear. With what Sue's saying, that's how you get your inner actor, inner actress going. If you're not a natural actress is you convince yourself, this is the truth. This is the truth they need to hear. Yes. And it's okay if part of the answer is kick the can down the road. So when I would tell my father-in-law, you're going home, it's just not now, you're going home tomorrow. And that would make him comfortable. And what the natural instinct, I think what kept my mother-in-law from doing that is she was so worried that tomorrow he was going to remember that he was supposed to go home. It never happened, ever. And I think honestly, if you can even worry, just take tomorrow, tomorrow's not your problem. You'll deal with it tomorrow if there is a problem. There's not. But if there is one, you'll deal with across that bridge tomorrow. Right now, you're trying to diffuse the situation and it's okay to kick the can down the road when you're doing it. And you'll learn what comforts them. You may try something and it doesn't give them a lot of comfort. And just, it's like an actor, you're going to add lib your lines. But the energy of it is you're telling them the truth. So your whole energy is there. Yeah. Yeah. And you're trying to get in the moment and I'll tell a story. And this is probably the most difficult, one of the most difficult parts of my caregiving journey is when my husband forgot who I was. Now, with my mother-in-law, my father-in-law, like I said, a couple of nights a week, he'd say, who are you? She'd say, I'm your wife. And he'd say, you know, you're not. And by the next, and maybe he didn't know who she was all night long. And by the next morning, it was fine. He knew exactly who she was. But for me, we, it was a turning point in our journey. And the way it started was one morning or one mid-morning, we're driving down the road in my, I'm driving, my husband doesn't drive anymore at this point. And we're driving down the road and we're going to the bakery to pick up a birthday cake for his mother, whose birthday is the next day. And he says, sitting in the passenger seat, he looks at me and he says, how do you like driving this car? It's an odd question. I've had this car for six years, but okay. I say, oh, I really like it. He's a car guy. So maybe just curious how the car drives. Looks at me a couple of minutes later. He says, well, she really likes driving it too. But I thought, what's an odd comment. But I mean, he's got dementia. So who knows, whatever. Driving, he says, now where are we going? I said, well, we're going to the bakery to pick up a birthday cake for your mother for her birthday. He says, you are going to like my parents. They are the nicest people. I thought, oh my goodness. He has no one earthly idea who I am. Talk about a punch in the gut. But I held it together because we had had enough hallucinations and delusions at that point to where I said, well, tell me about your parents. And I put on my inner actress and we went through the day and the bakery went to his parents house. I had to kind of whisper. He doesn't know who I am. So they wouldn't say anything. We got home and I realized I hadn't had a shower yet. And I'm like, I can't go into the master bathroom, strip naked and take a shower in front of this man who thinks I'm a guest in his house. So I had to gather up my toiletries and some clothes and go upstairs to one of the guest rooms and take a shower. The evening progressed. He still didn't know who I was. So I slept up there and that's when I moved upstairs because he never as far as I know figured out who I was after that. However, what's interesting about the story is he did treat me like a guest in his house. He would say, now where do you live? I'd say, I live upstairs. Okay. Well, who lives up there with you? I'd answer that question over and over again. If I wore my wedding ring, it upset it. Who are you married to? I didn't know you were married. It upset him if I wore my wedding ring several months into it. We had some friends come over for lunch and we were eating lunches as a group and remember he's got aphasia. So his language isn't very good. And one of the friends turned to me and she says, oh my goodness, he's flirting with you. We did stop asking for Nancy at some point and he did start actually treating me like I was someone that he cared about, which was interesting. And so to this day, I don't know. This happened four years ago. I don't know if he cares about me and loves me as his wife of 34 years or as his caregiver who he came to love over the last four years. I don't know. But it, you know, I've learned, I learned to live in that I'm the caregiver who lives upstairs world and it never went away as far as I know. Well, I had an experience as well and mine did go away. We want people to know both sides of it and, you know, your story, I've heard others with stories like that and they are heartbreaking because, you know, like what I've always remembered is that deep down inside their heart still loves you. Right. It's just not able to express it in the same way. I had an experience with my husband where I was trying to get him to go to bed one night and it was getting late and he was not interested in going to bed. So I thought, well, I'll just go ahead and go to bed early, quote unquote, and maybe he'll come in in a few minutes. So I said, honey, I'm going to bed. I'll see you later. I go, I get in bed and I'm listening to hear anything about 15 minutes later. He starts coming down the hall, walks in the bedroom, comes to the foot of the bed and says, who are you? And I said, well, I'm Sue. I'm your wife. No, you're not. And he paused. And then he said, and I'm not going to sleep with anybody who's not my wife. I love that. So that's awesome. Inside, I'm like, yes, my husband is faithful. He's got deep into his diagnosis of dementia and he is still faithful. This is a great man. I love it. On the outside, what I expressed is, oh, I'm sorry, I got into the wrong bed. Excuse me. And I'll shut the door behind me. So I left the room, shut the door and I went out into the living room and lay down so I could face the room bedroom. I thought, I have no idea what I'm going to see the next day, what he's going to be doing in there. But about 15 minutes later, the bedroom door opens and he walks out, he comes over and he looks down on me on the sofa. He goes, what are you doing here? And I said, because I thought, aha, now you remember who I am. So I just thought I'd lay down. I must have dozed off. He said, it's time to go to bed. So, okay, honey, I'm on my way. So he had, and I called those dementia moments throughout our journey together. He would have periods of time where he was not there. His eyes would be glazed over. Sometimes he was so fearful and you want to hug them and you can't because they are part of their fear is of who you are. They don't know their situation. And so sometimes they pass and like Nancy with yours, I mean, it's heartbreaking, but sometimes they don't pass. So it's being prepared for whatever that's going to be. Yeah. Okay, well, let's talk a little bit about tip four, which is what to do in that we're diffusing, you know, like my father-in-law, how we the best way to diffuse. Yeah. What we want to do is we want to distract them and change the environment and that can look different. And we also want to interrupt their pattern so that we can if we can get them back on track, we can do that. So there are a variety of different ways to do that. One of them is based on whatever topic it is, we stay on topic, but we kind of distract them. So we're not trying to change what it is. Example with my husband, one evening he stood up and he said, it's time to go home. Now, fortunately, this is actually something I had learned about in a support group meeting. And so I was all prepared. And I said, oh, fine, honey, no problem. Let's go. Would you like to use the restroom before we go? Use the restroom off we go. And I said, may we please stop at Walmart. And I used Walmart because that's a store that usually has later hours. And I said, may we stop at Walmart on the way home? He said, oh, yeah, okay. So we go into Walmart and walk around a little bit. I just sometimes I would pick up a little something and sometimes not. And I would say, hey, honey, are you ready to go home? Oh, yeah, let's go home. And then we would drive back home. So it had changed his pattern enough, but I wasn't trying to alter it. Then I got to thinking, well, what if I could do that was something that he was really interested in and not actually have to change the physical location. My husband loved ice cream. So I, and by the way, I don't think he ever in his life turned it out. So I started when I got done with doing the dinner dishes, I would put out two bowls and two spoons. And if he did the time to go home, I would say, hey, I think that's a great idea. I was just about to get the ice cream out. Do you want to have a quick bowl of ice cream before we go? And he would be, yeah. And we would do that. And then he would forget that we weren't actually at home. He would be distracted enough. So we weren't changing the environment. And you know, with my father-in-law, once he would say, okay, about tomorrow, I would immediately say, all right, well, let's go into the den and watch TV. Because I needed to get, stop the conversation and move on. I'd gotten him to accept it. And now we needed to distract and change the topic or change the environment like you said. And change the environment and do something. Another strategy is to gradually shift their attention. Not a hard right turn, but make a small adjustment. And Nancy, I'll go back to your story of where they thought that somebody had stolen their wallet and you're looking for it. And one of the things you can have is something that they related to for a long time. It's got a deep memory for them, something they had at work, something that they really love, something that's got a lot of memories associated with it. And as you're looking for the wallet or if there's something else and you say, oh, look at this. Oh, honey, this is such a, and start talking about that and see if they can start gradually focusing on that. And if we can again break that pattern and have them focus on that, we have a better opportunity to then pick up a different conversation. Right. Or even in the, you know, someone stole my wallet. Great. Let's go. I'm sorry, but let's go look for it. You know, you want to get on board and get in there with them, go look for it and then say, you know what, let's take a break and get something to eat. Let's get some ice cream, as you said. You know, another good example where you just, and then, you know, somehow that just changes the subject and the environment and the topic and, and, and they're distracted enough to forget that they are focused on their way. And pick something that they like. If they like music, say, let's, let's listen to some music. If they like TV, we'll do that. If they like ice cream, pick ice cream. You know, pick something that they like. Walk the dog. You know, whatever it is, pick something that they like and say, let's take a quick break and do this. And then we'll, and then we'll get back to it. And that's important to tip five, Sue, because tip five is about debriefing. And part of debriefing is recording what happened and also recording what worked. Yes. You know, because how did you diffuse the situation successfully? Because number one, the next time you get into that situation, you don't want to have to try to remember everything, what worked? Secondly, if other people are taking care of your care receiver, you want to give them a playbook on how to diffuse the situation when it happens. That's huge. I mean, it's so huge because we tend to focus on us being the caregiver. And yet there will be times when somebody else is and the more information we can be gathering that supports them and it's what works, what didn't work? So they've got a complete idea and you do as well, things that you can be updating. I actually had to do that at one point when my mother-in-law ended up in the hospital and my father and my brother-in-law and his wife had to come take care of my father-in-law for a couple of days. And he was doing the sundowning. So I had to give them a rundown on what to say, what not to say, what works, what doesn't work to try to help them be prepared and sure enough, it did all happen. So they at least had the information they needed. Right. Yeah. Okay. So part of recording debriefing, I mean, part of debriefing is recording what happened and also what works and what doesn't work. Yes. And then try to identify any potential triggers are, of course, we already talked about late afternoons, sundowning, quite common. Sue calls that tired brain syndrome, which is. Yeah. And Nancy, I'd actually like to share a little bit about that and why I call it tired brain syndrome. The reason I call it tired brain syndrome is that's what it is. It's in the afternoon when their brains are tired. Their brains are working extra hard all day long and they get tired. And if you can tell, like my dad got his brain got tired at about the same time. And what we started doing was preempting that, that we would get him to have quiet time. We would calm things down. We would put soft music on. We would sit. We would have it be where he could get restful so that his brain could kind of recharge. And that's one of the things that's really important when you see a pattern that's like that. Remember that their brains do get tired and try to help with that. Is there a particular situation that causes it? People? So something in the environment? Are there shadows? You know, there's lots of things that could trigger it. The mirrors, obviously, in my house was one thing I had to take down at one point. So, so try to understand what might be triggering it. Also understand there might be medication of so sort of medical reason that it's triggered. My aunt's husband had Parkinson's and he started seeing people in the bathroom in the bedroom. And she would, she got on board, you know, and said, well, they're not hurting us. You know, it's going to be okay. We're just going to, you know, stay away from them. They're not going to, they're not going to hurt us. But then talked to the doctor and sure enough, one of the medication changes they had made, common side effect was hallucinations. And ironically, hallucinations was most commonly seeing people. So they were able to adjust this medication. UTI is another good example. They can really cause delusions and hallucinations as well as other challenges. Absolutely. And I had a coaching client whose husband developed a urinary tract infection. In a number of our podcast episodes, we talk about making sure our loved ones are drinking plenty of water so that they're not getting dehydrated and they're not getting urinary tract infection. Her husband all of a sudden started having hallucinations and his were very, very profound and he felt like they were attacking him and he was pushing and it got to be, she was afraid for herself and she was also afraid for him. And talked to the doctor about it and they checked him for a urinary tract infection and sure enough, it was. One of the challenging things about the urinary tract infection is that it manifests itself in so many different ways. And we want to make sure that when we are experiencing a hallucination or a delusion that we make sure a urinary tract infection is not underneath it. So I do believe, a part of debriefing, unless it's just something that happens commonly, if you get an uncommon situation, definitely talk to the doctor about it because there are multiple medical challenges that could be part of the problem. So, okay, let's go on to tip six. All right. Tip six, we have been the best actors we could possibly be and now we have walked off the stage. The acting is over and now it's time for us to deal with us. We didn't go to school for this. We often had something happen. We have absolutely no reference reservoir for. We didn't have any idea what was going on. And so it's important for us to explore our own feelings, explore how we feel about this. Give you a quick example. It was my grandmother's birthday and we were all sitting around and just all of a sudden she looked over and said, who are you? And I said, well, Suzy, I'm your granddaughter. No, you're not. Who are you? Why are you here? And it actually angered her. My being at her family birthday party was angering her. And we did the good acting part and everything. And part of me was going, well, this is my grandmother. I mean, you know, here she is. She doesn't know me. She doesn't like me. You know, like that's worse. I mean, if I was a stranger, but at least she liked me, that would be one thing. And so especially when we have this happen the first time and it can be a real punch in the gut. It can also be very scary. We want to make sure we're getting support for this. So talk to people. Talk to your family members. Talk to a support group. Talk to a counselor. Talk to people about this because this is as real for you as it is for them. And I've had a lot of these in my caregiving journeys. It's very rare that you only have one. Right. It's a very good point. And just from the emotional side of it, I told the story about my husband forgetting who I was. Well, every afternoon for quite a while, a couple of weeks at least, when he would get tired brain syndrome, we'd sit down to watch the news. And all during the day, he would treat me like a guest in his house. And I sort of adjusted myself to where I was his caregiver and helper and I'd drive in places and he was very cordial and everything was great. But when he got tired in the evenings and we'd be sitting and watching the news, he would literally beg me, beg me to help him find her, which her is me. And he would be crying. He would say, if you'll just, and he couldn't drive. So imagine how scary and frustrating it is not to be able to drive. He didn't know how to get there, but he was basically begging me. If you'll just take me there, if you'll just take me there, they'll know where she is. They'll know where she is. And what he really meant was for me to take him to my office. Now, this was in the middle of COVID. There weren't anybody working in any offices anyway. But, but he just literally was crying, begging me. And this happened night after night after night because he couldn't find me. And the part that hurts me the most and this I struggled to tell this without crying. But the part that hurt me the most is early in his diagnosis. When he did still understand for the first couple of years, he would be frightened about what was going on. And I told him time and time again, we're in this together. I'm not going anywhere. I will always be here. And it was so hurtful to me and my, I hurt so much over the fact that he thought I was gone. And he thought I wasn't there and didn't know where I was. And it upset me. I, my sister, I joked with her and called it, you know, a boo-hoo fest. I'm sitting there on the, holding his hand and looking him in the eyes and I'm crying, telling him it's going to be okay. He's crying, begging for me to help him. It was, it was really, really one of the most difficult times in our journey. And part of it was the emotion for me realizing or feeling like he thinks I've deserted him and he doesn't know where I am. Nancy, thank you for sharing that because it's so deeply personal and it's so emotional. And I appreciate that very much that other people can hear it and learn from it. And I think summarizing this tip with one phrase is give yourself grace upon grace. For us going through this, again, we don't have a reference reservoir for it. We didn't go to school for this. It's not going to manifest itself the same way. It's our loved one and what we want to protect them, we want to help them. And we can't do what it is we want because we can't meet them where they're at. Like physically, we can't go give them a hug because they don't know who we are. And so we're going to meet them where they're at in the best way we can and give yourself a ton of grace on this. Do not judge yourself, get support, talk to other people and you're not alone. And if you weren't a good actress this time, you'll be a better actress the next time. You can do it. Let's summarize. In this episode, we talked about how to be present. Yeah. Get in there with them, right? Yep. How to literally act when delusions and hallucinations happen. We shared six tips. The first tip was to get yourself in the right frame of mind. Calm, body language. You know, put your best actress on. Second, validate their feelings and reassure them. Third, don't be scared to tell them the truth they need to hear. Think of it that way. That's how you'll get your good actor or actress turned on. Fourth, distract. Distract, change the environment, get out some ice cream. Fifth, debrief when it's over. If it's not a common occurrence, talk to the doctor. Make sure you're documenting what works and what doesn't work. And lastly, when the acting's over, give yourself a lot, a lot of grace and get support. If you have tips for when delusions and hallucinations happen, we'd love for you to share those on our Facebook page or our Instagram page. You will find both of those links in the show notes. What we talked about today is a very emotional topic and very difficult. But these tips should help you get through it and come out the other side. We're all on this journey together. Yes, we are.